Referrals
Organizations dedicated to ending Duchenne:
Parent Project Muscular Dystrophy
www.parentprojectmd.org
Comprehensive Care for those with Muscular Dystrophy:
Cincinnati Children's Hospital - Comprehensive Neuromuscular Center
http://www.cincinnatichildrens.org/svc/alpha/n/neuromuscular/health/
Nutrition and Supplement Information:
(Remember to always consult with your physician before beginning any supplements)
Search for current nutrition research related to DMD
http://jn.nutrition.org/
Research:
Updated Research on CureDuchenne.org
http://www.cureduchenne.org/research/
http://www.cureduchenne.org/category/research-articles/article-archive/
Research updates on ParentProjectMD.org
http://www.parentprojectmd.org/site/PageServer?pagename=advancing_research
Prednisone vs. Deflazacort in DMD (2000)
http://www.distrofiamuscular.net/deflazacort2.pdf
Equipment:
Custom Night Splints:
www.dafo.com
Strollers and adapted mobility sites:
www.adaptivemall.com
www.sammonspreston.com
www.maclarenbaby.com
Stroller recommendations:
| Children under 55 pounds: Special Tomato Buggy Maclaren Quest Sport | up to 90 pounds: Special Tomato eio Push Chair | Up to 140 pounds: Maclaren Major Elite |
Many electric scooters, manual and power wheelchairs exist. Please consult with your physical therapist and medical equipment supplier when considering these options.